Tag: retinitis pigmentosa

12
Oct

World Sight Day 2017

Visual Disability Awareness Today for World Sight Day, my brother and I discussed and answered questions about living with Retinitis Pigmentosa; a rare genetic eye disease leading to blindness.

10
Oct

Venda Hiking Adventure – arrival in Mukambani Village

MY HIKING TRAVEL GROUP The conversation on the journey from the airport to Venda is so riveting, that even though I’m exhausted, I ditch my planned nap and tune in. In the travel group is Liam, a videographer, Pearl, a pharmacist turned property manager, Jana, an artist, Jenny, a former MK operative, who during apartheid was in exile for about a

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15
Sep

Partially sighted traveller – “assistance required”

“Before I go blind” bucket-list adventures. A rural hiking adventure in Venda – Day 1 Raising awareness for Retina South Africa, and empowering the partially sighted (visually impaired). Sunday morning. Getting to Johannesburg. I’m almost hallucinating with tiredness as I check in at Cape Town International airport at 5am. The plane is taking off at 6:15a.m to Johannesburg and I’ve

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26
Aug

Hiking adventures with my cane in rural Africa

Good day Michele Details follow of a walk in Venda I’ve been trying for years to make a reality…A South African ‘Camino’ albeit in shorter form. This is the ‘inaugural’ walk. Rather short notice I know. It would provide unparalleled exposure to African/Venda culture, walking through magnificent countryside- one of the last ‘deep’ rural, traditional areas of South Africa! All the best, Jeff

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14
Aug

Going Blind – Visual Disability Awareness

Understanding each other creates a better world.  In my video, I share how it feels to go blind.  

22
Oct

Going blind sucks!

“There must be some good stuff about having tunnel vision”, a friend said to me the other day. It means you don’t have to see all the shit around you. We were walking down a side street at the time, me holding onto her elbow. I asked her to elaborate and she said ‘’Well, you missed seeing a guy peeing

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31
Jul

When is the right time to get a mobility cane?

I’ve just entered Cape Town Medi-Clinic, and am in a rush to make visiting hours. I walk at a brisk pace, eyes focused straight ahead. Whack!! Something has smacked into my shoulder, knocking me off balance. ‘’You just ran into me!!’’ a woman shrieks. I scan the area directly in front of me and take in an elderly, and fragile

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23
Feb

Living with Retinitis Pigmentosa

I’m sitting with my kids and parents at the Look Out restaurant in Hout Bay when a man approaches our table. ‘You have beautiful eyes. Really beautiful. I just had to come over and tell you that.’ Although I have been offered this compliment throughout my life, I’m still flattered. Especially since I am becoming aware of fine wrinkles and

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23
Feb

Retinitis Pigmentosa – Symptoms, Causes and Treatment

Retinitis pigmentosa (RP) is a rare, inherited disease in which the light-sensitive retina of the eye slowly and progressively degenerates. Eventually, blindness results. Symptoms of Retinitis Pigmentosa The first signs of RP usually occur in early childhood, when both eyes typically are affected. Night vision can be poor, and the field of vision may begin to narrow. When RP first starts to appear,

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24
Feb

I do Table Mountain

Michele experience a sunset trip up Table Mountain, Cape Town’s New 7 Wonder of the Natural World.